Thursday, 12 February 2015

Anorexia Nervosa: My Story

I’ve written this blog post about 30 times in my head already. But every time I sit at my laptop to actually write it I just can’t seem to. I think it’s because I’m still ashamed of this part of myself. So much stigma still exists around eating disorders, that I hide the fact that as a teenager, I had one. It’s not something I like to think about or talk about, and so writing this post is very difficult for me. I think I’ve been approaching it the wrong way, so I’m trying a different approach. The scientist in me is going to take this from a scientific perspective. I’m not going to talk a huge amount about my own experience, not yet anyway, and I may never do. It is part of my life I would rather forget, but I’m using my experience to try and make a difference to others with eating disorders. So here goes.

There are currently four recognised eating disorders in the UK: bulimia nervosa, binge-eating disorder, EDNOS (eating disorder not otherwise specified) and anorexia nervosa. Roughly 1% of women will develop anorexia nervosa at some point in their life. At the age of 15, I found that I had become that one in a hundred.

Anorexia has the highest mortality rate of all the mental illnesses, with up to 20% of anorexics dying from it. Death is usually due to complications, mainly heart failure, though a small percentage are due to suicide. Around 50% of those with anorexia also have major depressive disorder, something I also experienced. For those of you who know little about anorexia I shall attempt to explain a little about the illness. There are many symptoms of anorexia nervosa; I experienced almost all of them. These include:
-          Severe weight loss (BMI below 17.5)
-          Sleeping problems
-          Tiredness
-          Dizziness
-          Feeling cold
-          Amenorrhoea
-          Hair loss
-          Irritability
-          Perfectionism
-          Concentration difficulties
-          Feeling genuinely fat when you are actually underweight (body dysmorphia)
-          Excessive exercising
-          Ritual behaviours

Anorexia affects the entire body, with the following complications very commonly occurring:
-          Low white blood cell count
-          Anaemia
-          Lowered immune system functioning
-          Loss of heart muscle
-          Poor circulation
-          Low blood pressure  
-          Osteoporosis (weakened bones)

These complications and symptoms are all fully reversible, if treatment is provided early on in the course of the illness. When people at school noticed my extreme weight loss, the school contacted my mum, who took me straight to the doctors. At the doctors I was told I probably had an eating disorder but the waiting list for treatment was 6 months. Now 6 months is more than enough time for anorexia to kill you. And it’s a long time for complications to develop. Fortunately, my family has access to private health insurance through my mum’s work. So I saw an eating disorder specialist very quickly, and was diagnosed with anorexia nervosa. My treatment involved frequent visits with the specialist, as well as weekly counselling to help me work through the way I was feeling. I’m not going to go into how I got better. Let’s just say it was a very long, very difficult journey that I got through due to expert help and the most wonderful support from my family. I was very lucky, my anorexia lasted just under 3 years from onset to full recovery. I was one of those in the 46% of anorexics who make a full and complete recovery. And for me, running has totally transformed the way I view food. Food is necessary fuel now; if I don’t eat enough I can’t run far enough. It’s totally transformed my life. Not everyone is as fortunate as I was, however. Not everyone has the access to private healthcare that I had. For some, that 6 months waiting list is their reality, and some of those will die. This is where b-eat comes in.

B-eat are the leading UK eating disorders charity. They fund vital research into the causes of eating disorders and development of treatments. Since recovering, I’ve been on their research mailing list, which means I take part in a lot of their research as a recovered anorexic. But they also run support groups for those with eating disorders. They provide information and support for the families and friends. In short, b-eat are a lifeline for some families. In my recovery journey, the hardest thing I faced was learning what was a normal amount to eat again. For others, the hardest part of recovery is getting treatment in the first place. B-eat are helping this to happen for more and more people. So that’s why I’m running 26.2 miles for them. Because there are currently around 1.6 million people in the UK with eating disorders. And if the money I raise helps only one of those 1.6 million, then I’ve made a worthwhile difference.

I’m also running the marathon to inspire others. To show 16 year old me, that not only can I fully recover from anorexia, but that I can be so fit and healthy that I’m able to run a marathon. I’m hoping that I can show others who are in the dark midst of an eating disorder, that things really can get better.

You can read more about b-eat and what they do at www.b-eat.co.uk. Please, if you are able to, sponsor me at www.justgiving.com/abinichollsruns and spread the fundraising page far and wide.


Thank you for taking the time to read this rather lengthy post. Thank you to all of you who supported me through my eating disorder, you’re kindness, patience and compassion means more to me than I can ever put into words. And for those who didn’t know about my eating disorder, please do not feel upset that I didn’t tell you. I don’t tell anyone, it became a dirty secret of mine. But now I feel able to stop hiding it, and use my experiences to make a difference.

Time to marathon: 2 months